Sickle cell disease is a group of inherited red blood cell disorders. It causes symptoms ranging from pain, to organ damage, to anemia. In the United States, sickle cell disease is most prevalent among African Americans, although it can be found in people of all races. About one in 12 African Americans carry the sickle cell trait, which means they are carriers of the disease. In addition, 1 of every 400 African Americans have sickle cell disease. People of Hispanic and Asian descent are also disproportionately affected by the disease.
Piedmont Health Services and Sickle Cell Agency serves the Piedmont region of North Carolina. Our service area includes Alamance, Caswell, Forsyth, Guilford, Randolph, Rockingham and Mecklenburg counties. We offer our clients the following services in order to improve their quality of life and help them manage their disease.
Newborn Screening: We provide free testing for sickle cell trait and sickle cell disease in our service area
Genetic Counseling: Genetic counseling is provided to individuals with sickle cell disease, sickle cell trait and other related genetic disorders. This service allows our clients to make informed child-bearing decisions
Case Management: Clients participate in a comprehensive case management program. Our case managers develop all-encompassing plans in order to provide medical services, referrals, education, transportation and even emergency financial assistance in order to ensure the highest quality of life for our clients
Summer Enrichment Camp: PHSSCA sponsors a week-long camp every summer for children in North Carolina with sickle cell disease. The camp is designed to foster independence and social skills by allowing campers to participate in a variety of recreational activities in a medically supervised environment.
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Centers for Disease Control - Sickle Cell Disease
Centers for Disease Control - Sickle Cell Trait
St. Jude - Downloadable Literature
Sickle Cell Disease Association of America
The Sickle Cell Information Center
National Institutes of Health - Sickle Cell Anemia
WebMD - Sickle Cell Disease
National Heart Lung and Blood Institute - Sickle Cell Anemia
North Carolina State Laboratory of Public Health - Newborn Screening (Physicians)